A Day With MS and Rituxan

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Rituxan in the “MS world” is used to slow down the progression of the disease by lengthening the time between attacks. It kills the B-cells, which are the cells that tell the T-cells to attack the Myelin.  The Myelin is what covers and protects our nerves, spinal cords and brain. I have experienced a reduction of numbness and increase in energy.  And what has been so amazing have been my MRI results, which have been stable for the past 6 months! YAY! Now everyone is different and might have a better experience with a different medication I am just sharing what has worked for me, for those who might be desperate to find something for them.

3 Reasons I choose Rituxan

1. Rituxan does not give me intense side effects

I have been blessed with no major side effects.  The most I have felt was a small allergic reaction, and nausea my first time.  I am not saying that it doesn’t have any side effects because it does, but I have been fortunate enough to not experience anything major. This has been my third infusion and everything went smooth.  Yes, I feel tired and drained, I will take it easy today.  Family ate dinner and we are now getting ready for a movie.

2.   Rituxan is less maintenance

I was first diagnosed in 2014, and I was taking Gilenya.  Gilenya is a pill I took once a day, EVERYDAY.  With all the memory issues and my ups  and downs I was not consistent, and  couldn’t keep up.  My MRI’s were not good and I had developed three new lesions. This became very concerning to my doctor, and she decided to introduce me to Rituxan Infusions. Rituxan is usually given twice every six months, two weeks apart. Each treatment last about 6 to 8 hours and it is given by way of IV. Three months after taking the drug,  is when Rituxan is at it’s highest potential. MRI’s are now stable and no more pills everyday, or waiting for a new pack of medication in the mail.

3. Rituxan has an affordable program

The honest truth is that Rituxan is an extremely expensive drug.  However, if you make less than $150,00 income and meet a few other requirements the drug can be offered free/low cost by the company who makes it. Talk to your doctor about it, they would know who to refer you to. I filled up all the paperwork and was approved!

The short video is a simple walk through of my third day of MS  infusion. Willy A.K.A my photographer A.K.A my fiancé, was so nice and supportive through out the whole process. He was by my side, he made sure I ate he made sure I was good the entire time.  My doctors and nurses are all in NYU, some the best doctors I have ever been around. The hospital is great and experience there is always welcoming and professional.  You can see from the beginning where I was more energized and  it slowly took a toll on me after a few hours.  The hospital was so nice to offer a foot massage for patients taking infusions/chemo.  It helps with circulation and gives us a nice boost to walk out feeling brand new.

Overall it was a good experience and I’m glad to share with you! Please feel free to ask any questions! I am here, shoot me an email if you want to be more private.  Together we are all learning and moving through this journey we call life.

 

“She was Brave, and Strong, and Broken, ALL at once” -Anna Funder

 

 

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